Hello everyone! I'm back again with an update about my health. It's been over a year since I've written an update, where has the time gone?
Last June, I got the call that I was once again cancer free and we got the go ahead to start officially trying to get pregnant! I met with an awesome new ob/gyn who told me that he's pretty sure my body has never ovulated on it's own, and that's why we haven't been able to get pregnant. So, he prescribed Clomid to help me ovulate. I started it in August. 3 months of taking it, no positive ovulation. He switched to Femara, which has better luck helping plus size women ovulate. 3 months of taking it, no positive ovulation. And then my body started fighting back and my periods stopped completely! My ob/gyn wasn't sure why, I was definitely not pregnant.
In April, I decided to make one last appointment with my oncologist before we moved, just to make sure everything was still looking alright. I met with his nurse practitioner, and she ordered a new ultrasound to take a look at my uterus, since it had been over a year since my last ultrasound. After my ultrasound, my oncologist's lead nurse called me to set up a biopsy appointment because my uterine lining once again looked too thick. A week after my biopsy, and the day before we moved to Amarillo, my oncologist called me to tell me that my atypical hyperplasia is back (pre-cancerous cells) and that I have to go back on the cancer pills!
But, my oncologist was able to refer me to a new oncologist near where we live up here, his mentor! It turns out, his mentor was relocating to Lubbock in June or July. We used to drive almost 2.5 hours to San Antonio to see my oncologist, Lubbock is only 1.5 hours away! I called this new oncologist when our insurance started again, and he was really great on the phone! His privileges didn't start until the end of August, so now I'm going to call this week to set up an appointment with him. He did say on the phone that I might not need another surgery so soon, or surgeries so frequently, because he has a 2nd medication that he uses that might cut back on the amount of surgeries I need. I'm hopeful that it works for me!
So, this is where I'm at now - back on the cancer pills and calling this week to make an appointment to see this new oncologist soon! I'll update again once I see my new oncologist, hopefully with good news! Thank you to everyone reading, and keeping us in your good thoughts and prayers!
Monday, September 2, 2019
Wednesday, August 1, 2018
Fat shaming doctors and advocating for yourself!
Fat-shaming by doctors is real and total bullshit.I have been fat shamed by MULTIPLE doctors, every one of them telling me that all my problems would be solved if I just lost weight.
Brian and I started to get pregnant as soon as we got married. After a year of trying without any luck, I made an appointment at a local clinic (no health insurance then). I was positive that I had Polycystic Ovarian Syndrome, and that it was preventing me from ovulating. The doctor I saw told me to lose 100lb and then I'd be able to get pregnant, and told me that any other doctor I saw would tell me the same thing. I asked him about PCOS and he didn't know what it was. Then he tried to sell me a diet book that he co-wrote! I left the clinic and cried. That doctor left me feeling so awful about myself, I refused to go to the doctor for 3 years after that.
My next doctor was excellent, officially diagnosed me with PCOS and actually listened to my concerns about infertility. But he still told me that I needed to lose a considerable amount of weight before he'd help me get pregnant.
Once we moved, and I found a new doctor, she also told me to focus on losing weight before trying to get pregnant. But she found out that I had a thyroid that was barely functioning. That, combined with my PCOS, it's no wonder I was having trouble losing weight! She was actually pissed on my behalf that none of my previous doctors had ever checked my thyroid function.
Then I found out that the PCOS had caused endometrial/uterine cancer. I can't help but wonder if I would've ever gotten cancer if I'd had doctors who took my PCOS seriously from the start. Doctors who even knew that PCOS could cause cancer, and who told me that if was a possibility, because I had no idea it was something that I should even worry about. I had no idea it was something I should've been getting checked for regularly. Thankfully, my cancer is very slow growing. But it's also something that will continue to come back as long as I keep my uterus. The medications to fight the cancer caused weight gain. I gained 40lb in 6 months. Finally went into remission, only to have it start to come back after 6 months. Once again, I'm now in remission. (YAY!) I've lost 40lb in the last year.
Then I found out that the PCOS had caused endometrial/uterine cancer. I can't help but wonder if I would've ever gotten cancer if I'd had doctors who took my PCOS seriously from the start. Doctors who even knew that PCOS could cause cancer, and who told me that if was a possibility, because I had no idea it was something that I should even worry about. I had no idea it was something I should've been getting checked for regularly. Thankfully, my cancer is very slow growing. But it's also something that will continue to come back as long as I keep my uterus. The medications to fight the cancer caused weight gain. I gained 40lb in 6 months. Finally went into remission, only to have it start to come back after 6 months. Once again, I'm now in remission. (YAY!) I've lost 40lb in the last year.
My AWESOME oncologist completely supports my decision to try to get pregnant now, while I'm in a window of remission. He referred me to one of his personal friends who is an ob/gyn. I saw him in June, right after getting my remission news.
This new ob/gyn is the FIRST ob/gyn who took me seriously, who didn't tell me to lose weight FIRST. He told me that there's no reason why we can't try to pregnant with some medication help WHILE I'm working on losing weight.He was the first doctor who saw my weight as a symptom of PCOS, and looking past it to see what else was going on. I actually cried when I got in the car, I was so relieved to be heard and taken seriously as a woman, not just a fat woman. My new ob/gyn has put me on Clomid, to try and get my body to ovulate. He agrees with me that I've probably never ovulated, and that's what prevented us from getting pregnant. I just finished the first round! It doesn't look that I ovulated in the first month, but I'm not worried! I'm hopeful for the next round. He said he'd give me 6 rounds (months) to try to ovulate on this medication before ordering more tests.
But it's taken me almost 9 years of doctors and trying to conceive before I've finally found a doctor who has looking past my weight. You have to advocate for yourself and your health! If you have a doctor who doesn't listen to you, who tells you to lose weight first, LEAVE! Find a new doctor! I am completely serious. If you walk into a doctor's office and start describing symptoms that you feel aren't related to your weight, and that doctor tells you to "JUST LOSE WEIGHT" then walk out. Get up and leave! Because you deserve a doctor that listens to you, who doesn't just see your weight and write you off as an unhealthy person because you're heavy. YOU DESERVE BETTER! Fat shaming by doctors is ridiculous. Fat shaming by anyone is ridiculous actually, I shouldn't be given dirty looks at the gym either. But I can't do anything about that. But by doctors is even worse. If you feel like your doctor is writing you and your concerns off due to your weight, find a new doctor. 100% No one deserves to feel unheard by their doctor.
This new ob/gyn is the FIRST ob/gyn who took me seriously, who didn't tell me to lose weight FIRST. He told me that there's no reason why we can't try to pregnant with some medication help WHILE I'm working on losing weight.He was the first doctor who saw my weight as a symptom of PCOS, and looking past it to see what else was going on. I actually cried when I got in the car, I was so relieved to be heard and taken seriously as a woman, not just a fat woman. My new ob/gyn has put me on Clomid, to try and get my body to ovulate. He agrees with me that I've probably never ovulated, and that's what prevented us from getting pregnant. I just finished the first round! It doesn't look that I ovulated in the first month, but I'm not worried! I'm hopeful for the next round. He said he'd give me 6 rounds (months) to try to ovulate on this medication before ordering more tests.
But it's taken me almost 9 years of doctors and trying to conceive before I've finally found a doctor who has looking past my weight. You have to advocate for yourself and your health! If you have a doctor who doesn't listen to you, who tells you to lose weight first, LEAVE! Find a new doctor! I am completely serious. If you walk into a doctor's office and start describing symptoms that you feel aren't related to your weight, and that doctor tells you to "JUST LOSE WEIGHT" then walk out. Get up and leave! Because you deserve a doctor that listens to you, who doesn't just see your weight and write you off as an unhealthy person because you're heavy. YOU DESERVE BETTER! Fat shaming by doctors is ridiculous. Fat shaming by anyone is ridiculous actually, I shouldn't be given dirty looks at the gym either. But I can't do anything about that. But by doctors is even worse. If you feel like your doctor is writing you and your concerns off due to your weight, find a new doctor. 100% No one deserves to feel unheard by their doctor.
Wednesday, June 6, 2018
I'm Back! With an update..
Hello family, friends, and random strangers!
I'm back with an update! Nothing much to say about my primary doctor and my hematologist, since I haven't seen either of them since my last update. My primary doctor only prescribes the medicine for my thyroid, and he hasn't needed to see me back yet. My hematologist has rescheduled my last 2 appointments with him, so I have no idea when I'll actually get an update on my iron levels. But I'll let you all know when it happens!
However, I did go see my oncologist this past Friday (6/1) for a check-up since my last surgery at the end of January. I had all my fingers crossed that I'd get good news and wouldn't need another surgery. He did a biopsy (OUCH!) and told me that they should have the results back in about a week. The results would tell us whether or not I would need another surgery, or if I was back in remission and once again cancer free. Exciting!!
While I was there, I told him that if I was in remission again, I wanted to really try to get pregnant by the end of the year. He told me that wasn't really his department and we both laughed. But I told him that I didn't want to be on his treatment plan and trying to get pregnant at the same time without communicating with him. He understood and agreed. He asked if I had an ob/gyn down here, and I told him I used to but wanted to get a new one. He told me that he's friends with an ob/gyn down here, and that he would see if his friend had any opening for new patients. He told me that this new ob/gyn would either be able to help get me pregnant, or he would know who can!
My oncologist actually texted the ob/gyn while I was changing, and the ob/gyn said "Sure, send her over!" Yay! So my oncologist said that he'd send my file over, and the ob/gyn's office would give me a call to schedule an appointment.
That was pretty much the end of my appointment. So the waiting for my biopsy results began..
I got the call earlier today (Wednesday 6/6) from my oncologist's main nurse. She was happy to report that I am once again CANCER FREE!! All my cells are completely normal, I don't have any cancerous or even pre-cancerous cells. I don't need another surgery, I can stop the cancer pills, and I officially have the all clear to try to really get pregnant this year!!
About 30 minutes after I hung up the phone with this great news, the new ob/gyn's office called me to schedule an appointment. I was excited, but knew that it would be a wait before I could get in. OR SO I THOUGHT! I now have an appointment with this new ob/gyn to discuss my infertility options scheduled for this Monday (6/11)!!
It's so weird, because for years now I've been telling Brian that I didn't think we'd have a baby until I was 30. I just kept having this feeling that it wouldn't happen until I was 30. I have no idea why. But now, my 30th birthday is in just over a week, I'm once again cancer free, I have an appointment to discuss getting pregnant, things are just moving right along for us!
Thank you to my amazing husband, for being my rock through all of this. And major thanks to all our family and friends who send us thoughts and prayers. I'll write another update after the ob/gyn appointment!
I'm back with an update! Nothing much to say about my primary doctor and my hematologist, since I haven't seen either of them since my last update. My primary doctor only prescribes the medicine for my thyroid, and he hasn't needed to see me back yet. My hematologist has rescheduled my last 2 appointments with him, so I have no idea when I'll actually get an update on my iron levels. But I'll let you all know when it happens!
However, I did go see my oncologist this past Friday (6/1) for a check-up since my last surgery at the end of January. I had all my fingers crossed that I'd get good news and wouldn't need another surgery. He did a biopsy (OUCH!) and told me that they should have the results back in about a week. The results would tell us whether or not I would need another surgery, or if I was back in remission and once again cancer free. Exciting!!
While I was there, I told him that if I was in remission again, I wanted to really try to get pregnant by the end of the year. He told me that wasn't really his department and we both laughed. But I told him that I didn't want to be on his treatment plan and trying to get pregnant at the same time without communicating with him. He understood and agreed. He asked if I had an ob/gyn down here, and I told him I used to but wanted to get a new one. He told me that he's friends with an ob/gyn down here, and that he would see if his friend had any opening for new patients. He told me that this new ob/gyn would either be able to help get me pregnant, or he would know who can!
My oncologist actually texted the ob/gyn while I was changing, and the ob/gyn said "Sure, send her over!" Yay! So my oncologist said that he'd send my file over, and the ob/gyn's office would give me a call to schedule an appointment.
That was pretty much the end of my appointment. So the waiting for my biopsy results began..
I got the call earlier today (Wednesday 6/6) from my oncologist's main nurse. She was happy to report that I am once again CANCER FREE!! All my cells are completely normal, I don't have any cancerous or even pre-cancerous cells. I don't need another surgery, I can stop the cancer pills, and I officially have the all clear to try to really get pregnant this year!!
About 30 minutes after I hung up the phone with this great news, the new ob/gyn's office called me to schedule an appointment. I was excited, but knew that it would be a wait before I could get in. OR SO I THOUGHT! I now have an appointment with this new ob/gyn to discuss my infertility options scheduled for this Monday (6/11)!!
It's so weird, because for years now I've been telling Brian that I didn't think we'd have a baby until I was 30. I just kept having this feeling that it wouldn't happen until I was 30. I have no idea why. But now, my 30th birthday is in just over a week, I'm once again cancer free, I have an appointment to discuss getting pregnant, things are just moving right along for us!
Thank you to my amazing husband, for being my rock through all of this. And major thanks to all our family and friends who send us thoughts and prayers. I'll write another update after the ob/gyn appointment!
Saturday, February 17, 2018
Checking In After Check-Ups
Hello again all!
I'm here for another check-in after both my follow-up after my 4th surgery, and my follow-up appointment with my hematologist after getting an IV iron infusion.
Surgery Follow-Up - My oncologist's nurse called me on the Thursday morning after my surgery to give me my pathology results over the phone. My cancer hasn't come back! But it had started to progress abnormally again. Suck. So, I am back to taking the cancer pills twice a day. Not ideal, since they cause increased appetite and weight gain. But hey, it's better than cancer! Haha! The nurse told me that I could cancel my follow-up appointment, unless I had any questions for my oncologist. I told her to go ahead and cancel it, since this was my fourth surgery. I'm an old pro! She cancelled that appointment and told me that my oncologist wants to see me back in 4 months. I'm scheduled to go back on June 1st. And I'll be on the cancer pills until then, and we'll see what happens at that time.
Iron Infusion -
I had my IV iron infusion on that same Thursday after my surgery. The whole process took about 3 hours from start to finish. I got there, was checked in, and called back. They inserted my IV and gave me both aspirin and benadryl, to help my body absorb the iron and to prevent itching around my IV site. Then I had to wait about 30 minutes for the IV to arrive from the pharmacy. It took another 30 minutes for the iron to slowly drip into my body, and once it was done, I had to wait 30 minutes to make sure I didn't have an adverse reaction to the iron. I felt fine, so they let me go. I expected to feel better right away, but it took me a few days to notice a difference. I'm not as tired as I used to be, I was able to drastically cut back on my caffeine usage! I'm still sleeping an average of 9 hours a night, but I think that also comes from recovering from surgery and being back on cancer pills. But I used to take a nap almost every day, even falling asleep during nap-time at work. Now, I'm not taking naps or feeling like I'm going to drop from exhaustion right before bed. I don't crave chewing on ice anymore, which is a major sign and symptom of iron deficient anemia.
Hematologist Follow-Up -
I saw my hematologist for a follow-up yesterday. He said that some of my iron numbers are still off, but that my iron count is finally in normal range! Probably for the first time in years. My red blood cells are still too small, but he's hoping that they'll get into normal range by the next time he see me. He let me cut down to only taking iron once a day, instead of twice. That takes me total daily pill count from 13 to 11! Yay progress! He wants to see me back in 3 months for repeat blood work, to see how my levels are doing. The cancer pill actually prevent normal periods, so he expects my iron levels to be in completely normal range when I come back in the middle of May. I hope so!
So, that's where I'm at right now. I have an appointment with my primary doctor in about a month, for a normal check-up. Then another hematologist appoint in the middle of May, and an appointment with my oncologist on June 1st. I'll update here after each appointment! Thanks for following and keeping me in your thoughts and prayers! :-)
I'm here for another check-in after both my follow-up after my 4th surgery, and my follow-up appointment with my hematologist after getting an IV iron infusion.
Surgery Follow-Up - My oncologist's nurse called me on the Thursday morning after my surgery to give me my pathology results over the phone. My cancer hasn't come back! But it had started to progress abnormally again. Suck. So, I am back to taking the cancer pills twice a day. Not ideal, since they cause increased appetite and weight gain. But hey, it's better than cancer! Haha! The nurse told me that I could cancel my follow-up appointment, unless I had any questions for my oncologist. I told her to go ahead and cancel it, since this was my fourth surgery. I'm an old pro! She cancelled that appointment and told me that my oncologist wants to see me back in 4 months. I'm scheduled to go back on June 1st. And I'll be on the cancer pills until then, and we'll see what happens at that time.
Iron Infusion -
I had my IV iron infusion on that same Thursday after my surgery. The whole process took about 3 hours from start to finish. I got there, was checked in, and called back. They inserted my IV and gave me both aspirin and benadryl, to help my body absorb the iron and to prevent itching around my IV site. Then I had to wait about 30 minutes for the IV to arrive from the pharmacy. It took another 30 minutes for the iron to slowly drip into my body, and once it was done, I had to wait 30 minutes to make sure I didn't have an adverse reaction to the iron. I felt fine, so they let me go. I expected to feel better right away, but it took me a few days to notice a difference. I'm not as tired as I used to be, I was able to drastically cut back on my caffeine usage! I'm still sleeping an average of 9 hours a night, but I think that also comes from recovering from surgery and being back on cancer pills. But I used to take a nap almost every day, even falling asleep during nap-time at work. Now, I'm not taking naps or feeling like I'm going to drop from exhaustion right before bed. I don't crave chewing on ice anymore, which is a major sign and symptom of iron deficient anemia.
Hematologist Follow-Up -
I saw my hematologist for a follow-up yesterday. He said that some of my iron numbers are still off, but that my iron count is finally in normal range! Probably for the first time in years. My red blood cells are still too small, but he's hoping that they'll get into normal range by the next time he see me. He let me cut down to only taking iron once a day, instead of twice. That takes me total daily pill count from 13 to 11! Yay progress! He wants to see me back in 3 months for repeat blood work, to see how my levels are doing. The cancer pill actually prevent normal periods, so he expects my iron levels to be in completely normal range when I come back in the middle of May. I hope so!
So, that's where I'm at right now. I have an appointment with my primary doctor in about a month, for a normal check-up. Then another hematologist appoint in the middle of May, and an appointment with my oncologist on June 1st. I'll update here after each appointment! Thanks for following and keeping me in your thoughts and prayers! :-)
Tuesday, January 30, 2018
Another Update, Another Post.. Surgery #4
Hello all! After seeing the hematologist and having another surgery, I'm here with another update!
Hematologist appointment first - I had my appointment with the blood doctor. He was great. Very friendly, and listened to everything I had to say before he talked. He figured out that one of the medications I stopped recently was causing the high white blood cell counts. Bam! One problem solved within just a couple minutes. He also said that the cancer and problems I've been having with all of that is most likely what's causing my iron to decrease, even when I'm not having periods. So he scheduled me for an iron infusion through an IV. I'll be doing that this coming Thursday! He's not super concerned about my numbers, because the iron pills are bringing up my iron levels. But it's just so slow, so the iron infusion will bring my iron counts into normal range, and then I'll continue the iron pills to keep me at a normal range. He told me that I'll feel awesome after the infusion, so I'm excited for it! :-)
Surgery update next - I had my latest (and hopefully last) surgery yesterday. I woke up at 3am, and we were on the road by 330am. We got to the hospital at about 545am, and got checked in at 6am. I was called back pretty quickly, we'd maybe been sitting down 20 minutes. I got to change into my oh-so-fashionable hospital gown and non-slip socks. My IV was inserted, and all my fancy hospital bands put on. I was styling! lol And then came the waiting.. My surgery was scheduled for 8am. The anesthesiologist came in at just after 8am, and said that he'd been told that my surgery was pushed to 830am. Nobody told us! But no big deal. My oncologist came in at 840am, to make sure we didn't have any questions. We joked that this was my 4th one of these, we're old pros now! They gave me the good drugs, and rolled me into the OR.
I woke up in recovery about an hour later. Minimal headache and nausea, mostly I just felt so tired! I was in recovery for about an hour, before getting wheeled into recovery2 and getting to see my hubby! Once I was steady enough to stand, I got dressed and we were ready to leave! I ate a banana just to tell my stomach to shut up, and once Brian was on the highway, I passed out! I slept the entire 2 hour drive home. And then ate a huge lunch! I had a bit of a headache, mostly from the lack of caffeine. And I was pretty dizzy and lightheaded, so I stayed parked on the couch for the rest of the evening. After we had dinner, I read in bed for a little while, and then feel asleep by 830pm. Woke up naturally at just after 7am, 10.5 hours of sleep later!
I'm feeling pretty good today! Minimal bleeding that comes and goes, a tiny bit of cramping. Still dizzy and lightheaded, so I'm staying parked on the couch again today. Some television, knitting, and reading. Thank goodness for my wonderful husband, he's been taking care of the dogs, the house, meals, and everything else. He's amazing!
My follow-up appointment for after surgery is on the Feb 15th, I'll get the pathology results from my surgery, and then I'll know what my next steps are going to be. Whether it's going back on the cancer pills, another surgery, different medications.. Then I'll have a follow-up appointment with the blood doctor on Feb 16th, so expect another blog update after those two appointments in a couple weeks!
Thank you to everyone for your good thoughts, prayers, and well wishes!
Hematologist appointment first - I had my appointment with the blood doctor. He was great. Very friendly, and listened to everything I had to say before he talked. He figured out that one of the medications I stopped recently was causing the high white blood cell counts. Bam! One problem solved within just a couple minutes. He also said that the cancer and problems I've been having with all of that is most likely what's causing my iron to decrease, even when I'm not having periods. So he scheduled me for an iron infusion through an IV. I'll be doing that this coming Thursday! He's not super concerned about my numbers, because the iron pills are bringing up my iron levels. But it's just so slow, so the iron infusion will bring my iron counts into normal range, and then I'll continue the iron pills to keep me at a normal range. He told me that I'll feel awesome after the infusion, so I'm excited for it! :-)
Surgery update next - I had my latest (and hopefully last) surgery yesterday. I woke up at 3am, and we were on the road by 330am. We got to the hospital at about 545am, and got checked in at 6am. I was called back pretty quickly, we'd maybe been sitting down 20 minutes. I got to change into my oh-so-fashionable hospital gown and non-slip socks. My IV was inserted, and all my fancy hospital bands put on. I was styling! lol And then came the waiting.. My surgery was scheduled for 8am. The anesthesiologist came in at just after 8am, and said that he'd been told that my surgery was pushed to 830am. Nobody told us! But no big deal. My oncologist came in at 840am, to make sure we didn't have any questions. We joked that this was my 4th one of these, we're old pros now! They gave me the good drugs, and rolled me into the OR.
I woke up in recovery about an hour later. Minimal headache and nausea, mostly I just felt so tired! I was in recovery for about an hour, before getting wheeled into recovery2 and getting to see my hubby! Once I was steady enough to stand, I got dressed and we were ready to leave! I ate a banana just to tell my stomach to shut up, and once Brian was on the highway, I passed out! I slept the entire 2 hour drive home. And then ate a huge lunch! I had a bit of a headache, mostly from the lack of caffeine. And I was pretty dizzy and lightheaded, so I stayed parked on the couch for the rest of the evening. After we had dinner, I read in bed for a little while, and then feel asleep by 830pm. Woke up naturally at just after 7am, 10.5 hours of sleep later!
I'm feeling pretty good today! Minimal bleeding that comes and goes, a tiny bit of cramping. Still dizzy and lightheaded, so I'm staying parked on the couch again today. Some television, knitting, and reading. Thank goodness for my wonderful husband, he's been taking care of the dogs, the house, meals, and everything else. He's amazing!
My follow-up appointment for after surgery is on the Feb 15th, I'll get the pathology results from my surgery, and then I'll know what my next steps are going to be. Whether it's going back on the cancer pills, another surgery, different medications.. Then I'll have a follow-up appointment with the blood doctor on Feb 16th, so expect another blog update after those two appointments in a couple weeks!
Thank you to everyone for your good thoughts, prayers, and well wishes!
Tuesday, January 16, 2018
6 Months Later..
Hello again family and friends! Happy New Year! I hope everyone had a wonderful holiday season!
I thought I'd write a (probably long) post about my health, and everything that's been going on lately. Be forewarned, I'm not holding anything back, so this might be too much information for some people. :-)
So, I officially went into remission for my endometrial cancer in July '17. While I was coming off the cancer pills, I started a period for the first time in about 13 months. The cancer pills actually prevented normal periods, so I hadn't had one since I started taking them in June '16. And that period was horrendous. I was in a lot of pain, and couldn't leave the house for over a week from the start. I found out that although the cancer pills prevented bleeding every month, they hadn't prevented my uterine lining from building up every month, they had just prevented my body from shedding the lining every month for a normal period. So, when my body was completely off the cancer pills, it tried to shed all that lining in one long period. I ended up bleeding for over a month. At that point, my oncologist prescribed a form of estrogen to help my body stop bleeding. Thankfully, that worked!
In September, I started a medication to regulate my periods and bleeding. Then I had a 3 month check up with my oncologist in October, and everything looked good! The period pills hadn't worked yet, but I was told to just give them a few months to start working.
In December, I had a normal blood work check-up with my primary. Everything looked great, except my iron was back to being too low. Not too concerning, except that I hadn't been having normal periods, so he couldn't figure out where my iron was going in my body. Plus, he noticed that my white count had been elevated for a few months. So he decided to refer me to a hematologist (blood doctor), for more detailed blood tests.
At the beginning of this month, I went in for another 3 month check-up with my oncologist. After a long talk about my iron and absent periods, and period pills still not working yet, he agreed with my primary's hematologist referral. He also decided to refer me to a gastroenterologist to check for an ulcer. Next, I had an ultrasound to look at my ovaries and uterus. My oncologist saw then that my uterine lining was thicker than it was supposed to be. Again. He decided right then to do a biopsy. I'll skip describing how much fun that was.. I was sent home to wait for the results. And he sent me for more blood work, to rule out any other problems for my low iron. So far, those blood tests have come back normal.
I got the results of my biopsy last week, and my cells are pre-cancerous again. So, I'm having another D&C surgery on January 29th. 2 weeks from now! Once I have this next surgery, my oncologist will decide if I need to go back on the cancer pills, based on what my pathology says after my surgery. Best case scenario, I don't have to go back on the cancer pills after this surgery, and I can be prescribed stronger period pills to help prevent my body from building up a lining and not shedding it, which is how the cells become cancerous. Then I have a post-op surgery follow up with my oncologist on February 15th, to go over the pathology results and to decide on our next steps.
I have an appointment with the hematologist this Friday, the 19th. Hopefully, we'll be able to figure out why my iron keeps dropping, even when I don't have a period, and why my white cells have been elevated, even when I'm not sick. I'm ready for some answers! And then I have an appointment with a gastroenterologist in April. Seriously, April. That was apparently the earliest they could see me. But I'm hoping that the hematologist will be able to figure out my problem without going to the gastroenterologist, and I can cancel that appointment in April.
So, that's where I'm at right now. Hematologist on Friday, another surgery in two weeks, and then a follow up appointment for surgery on February 15th.
Thank you all for your continued support, thoughts, and prayers. I really appreciate them all! <3
I thought I'd write a (probably long) post about my health, and everything that's been going on lately. Be forewarned, I'm not holding anything back, so this might be too much information for some people. :-)
So, I officially went into remission for my endometrial cancer in July '17. While I was coming off the cancer pills, I started a period for the first time in about 13 months. The cancer pills actually prevented normal periods, so I hadn't had one since I started taking them in June '16. And that period was horrendous. I was in a lot of pain, and couldn't leave the house for over a week from the start. I found out that although the cancer pills prevented bleeding every month, they hadn't prevented my uterine lining from building up every month, they had just prevented my body from shedding the lining every month for a normal period. So, when my body was completely off the cancer pills, it tried to shed all that lining in one long period. I ended up bleeding for over a month. At that point, my oncologist prescribed a form of estrogen to help my body stop bleeding. Thankfully, that worked!
In September, I started a medication to regulate my periods and bleeding. Then I had a 3 month check up with my oncologist in October, and everything looked good! The period pills hadn't worked yet, but I was told to just give them a few months to start working.
In December, I had a normal blood work check-up with my primary. Everything looked great, except my iron was back to being too low. Not too concerning, except that I hadn't been having normal periods, so he couldn't figure out where my iron was going in my body. Plus, he noticed that my white count had been elevated for a few months. So he decided to refer me to a hematologist (blood doctor), for more detailed blood tests.
At the beginning of this month, I went in for another 3 month check-up with my oncologist. After a long talk about my iron and absent periods, and period pills still not working yet, he agreed with my primary's hematologist referral. He also decided to refer me to a gastroenterologist to check for an ulcer. Next, I had an ultrasound to look at my ovaries and uterus. My oncologist saw then that my uterine lining was thicker than it was supposed to be. Again. He decided right then to do a biopsy. I'll skip describing how much fun that was.. I was sent home to wait for the results. And he sent me for more blood work, to rule out any other problems for my low iron. So far, those blood tests have come back normal.
I got the results of my biopsy last week, and my cells are pre-cancerous again. So, I'm having another D&C surgery on January 29th. 2 weeks from now! Once I have this next surgery, my oncologist will decide if I need to go back on the cancer pills, based on what my pathology says after my surgery. Best case scenario, I don't have to go back on the cancer pills after this surgery, and I can be prescribed stronger period pills to help prevent my body from building up a lining and not shedding it, which is how the cells become cancerous. Then I have a post-op surgery follow up with my oncologist on February 15th, to go over the pathology results and to decide on our next steps.
I have an appointment with the hematologist this Friday, the 19th. Hopefully, we'll be able to figure out why my iron keeps dropping, even when I don't have a period, and why my white cells have been elevated, even when I'm not sick. I'm ready for some answers! And then I have an appointment with a gastroenterologist in April. Seriously, April. That was apparently the earliest they could see me. But I'm hoping that the hematologist will be able to figure out my problem without going to the gastroenterologist, and I can cancel that appointment in April.
So, that's where I'm at right now. Hematologist on Friday, another surgery in two weeks, and then a follow up appointment for surgery on February 15th.
Thank you all for your continued support, thoughts, and prayers. I really appreciate them all! <3
Saturday, July 15, 2017
3rd Surgery Post & Great News!
Hello again everyone!
I had my 3rd surgery on June 26th, and my follow-up appointment this past Thursday. Here's a little update!
Surgery went well! I was in the out-patient ambulatory center, instead of the actual surgery wing of the hospital this time. It moved a bit faster, although it was a little less private. The surgery wing puts you in a private room before and after surgery, while the out-patient center was just curtained off cubicles. But I didn't mind, since we were in and out faster than the surgery wing. I only woke up with a headache, and starving of course! haha Thankfully, I remembered to have snacks in the car so I wasn't hangry on our way to get real food. Third times the charm, I guess! lol
My follow-up appointment was scheduled for 2.5 weeks later. I had to call my nurse 2 days before, to make sure they had my pathology results before my husband and I drove 2.5 hours to the doctor's office. After a brief hold, she came back on the line and said that they did have my results, and she was happy to tell me that I AM OFFICIALLY CANCER FREE! WOOHOO! I can't begin to tell you how much happy dancing my husband and I have been doing since I found out! =)
I still had to go to my follow-up appointment, to talk to my doctor about my next steps. He told me again that I am officially in remission! It's so great to hear. We talked about the possibility of my cancer coming back, and he said that I shouldn't worry about it. It's such a slow-growing cancer that just a yearly pap smear will be able to find it early enough. He said my real problem will still be getting pregnant. He prescribed me Provera, to try to regulate my monthly periods. I'll start taking that Sept. 1st. He also prescribed Metformin, to help my body process sugar and it should also help with weight loss. I started that yesterday. I'm going to start a low carb diet and regular exercising tomorrow to help with that weight loss too! He told me that I might still have to find a ob/gyn or fertility specialist to help get me pregnant eventually, but I want to focus on losing weight first.
So, I'll go back to my oncologist in October for an ultrasound and routine check up. And again in January, I believe. Hopefully, both of those checks will be completely clear, and then I'll switch to every 6 months.
Until then, I'm celebrating being cancer free! And I'll be working on weight loss and being healthier overall. And crafting! lol I have a long list of gifts to make in the next few months. I hope my next few posts will just be about losing weight and the crafty projects I'm working on, but I'll also keep you all updated on my next appointment with my oncologist in October!
Thank you all for going on this journey with me, and my husband. All your thoughts, prayers, and well wishes were very much appreciated! All the love to you all! =)
I had my 3rd surgery on June 26th, and my follow-up appointment this past Thursday. Here's a little update!
Surgery went well! I was in the out-patient ambulatory center, instead of the actual surgery wing of the hospital this time. It moved a bit faster, although it was a little less private. The surgery wing puts you in a private room before and after surgery, while the out-patient center was just curtained off cubicles. But I didn't mind, since we were in and out faster than the surgery wing. I only woke up with a headache, and starving of course! haha Thankfully, I remembered to have snacks in the car so I wasn't hangry on our way to get real food. Third times the charm, I guess! lol
My follow-up appointment was scheduled for 2.5 weeks later. I had to call my nurse 2 days before, to make sure they had my pathology results before my husband and I drove 2.5 hours to the doctor's office. After a brief hold, she came back on the line and said that they did have my results, and she was happy to tell me that I AM OFFICIALLY CANCER FREE! WOOHOO! I can't begin to tell you how much happy dancing my husband and I have been doing since I found out! =)
I still had to go to my follow-up appointment, to talk to my doctor about my next steps. He told me again that I am officially in remission! It's so great to hear. We talked about the possibility of my cancer coming back, and he said that I shouldn't worry about it. It's such a slow-growing cancer that just a yearly pap smear will be able to find it early enough. He said my real problem will still be getting pregnant. He prescribed me Provera, to try to regulate my monthly periods. I'll start taking that Sept. 1st. He also prescribed Metformin, to help my body process sugar and it should also help with weight loss. I started that yesterday. I'm going to start a low carb diet and regular exercising tomorrow to help with that weight loss too! He told me that I might still have to find a ob/gyn or fertility specialist to help get me pregnant eventually, but I want to focus on losing weight first.
So, I'll go back to my oncologist in October for an ultrasound and routine check up. And again in January, I believe. Hopefully, both of those checks will be completely clear, and then I'll switch to every 6 months.
Until then, I'm celebrating being cancer free! And I'll be working on weight loss and being healthier overall. And crafting! lol I have a long list of gifts to make in the next few months. I hope my next few posts will just be about losing weight and the crafty projects I'm working on, but I'll also keep you all updated on my next appointment with my oncologist in October!
Thank you all for going on this journey with me, and my husband. All your thoughts, prayers, and well wishes were very much appreciated! All the love to you all! =)
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